So we decided not to continue our website, www.avamonroeelliott.com because of the rising costs and the decreased income :( however I have been blogging much more here because I can access it directly. So I will add some Ava photos here :) We went to go see our little girl today and it was very emotional. I still have my moments when I ask God why, why us? Why our little girl? And I usually try to tell myself that I think he knew he was going to need our Ava for something special and that's why he gave us Brogan so quickly afterwards. His daily laughs and smiles are what brings myself and I know Patrick as well, so much happiness that we have been lacking this past year. I sometimes still don't understand why children have to die, they are not supposed to. I was walking through the "Little Angels" lot, where Ava is buried, looking at all the precious babies and children that rest there and just got a punch in the gut, as I had felt before. It's just not fair and I still feel like I have my qualms with God. Sometimes all I know is that I miss my little baby Ava and wish she was still here. We are lucky to have our Brogan though, both of our children are such a blessing to us.
xoxo
Lauren
(PS info about Ava:
*I am sad to announce that our sweet baby Ava peacefully passed away in her daddy's arms Saturday April 5th 2008 at 1:52am. She was beautiful and we love her and miss her dearly.
*Just wanted to let everyone know that little Ava Monroe was born March 25th 2008 at 6:51pm by c section. She weighed 4 lbs 13 oz. She is very tiny and very cute and we love her so much.
Tragically, Ava was diagnosed with a heart defect and Trisomy-18, or Edwards Syndrome, which is a rare genetic disorder that is fatal, and its victims typically only live a few days. Very few people even know about this disease and there is no cure... there is no way to prevent it... and 1 in up to 8,000 babies suffer from this rare disease: http://www. trisomy18. org.
Patrick and I are praying now for time with Ava. The hospital decided that her quality of life was most important now, so they have taken her off her monitors and sent us home. We have a hospice nurse that will be coming to out to check her every day.
We ask for prayers of time.)
*Just wanted to let everyone know that little Ava Monroe was born March 25th 2008 at 6:51pm by c section. She weighed 4 lbs 13 oz. She is very tiny and very cute and we love her so much.
Tragically, Ava was diagnosed with a heart defect and Trisomy-18, or Edwards Syndrome, which is a rare genetic disorder that is fatal, and its victims typically only live a few days. Very few people even know about this disease and there is no cure... there is no way to prevent it... and 1 in up to 8,000 babies suffer from this rare disease: http://www. trisomy18. org.
Patrick and I are praying now for time with Ava. The hospital decided that her quality of life was most important now, so they have taken her off her monitors and sent us home. We have a hospice nurse that will be coming to out to check her every day.
We ask for prayers of time.)
No comments:
Post a Comment